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Thursday, April 5, 2012

Still Here

Today marks day 6 of being in the hospital. I still don't have an answer to when we will be able to go home. Jacob's fever has been gone for 48 hours now but he just isn't eating and while his counts are rising they are still fairly low.

My biggest hope is that his appetite returns soon. Yesterday I worked all day just to get him to eat a few bites of food. It's exhausting. They started some IV nutrition but if he doesn't start eating soon I'm afraid that it will be a feeding tube next.

I know it sounds selfish - but I'm being honest here when I say that I just want to go home. I want to sit out in the sun and work in the dirt. I want to be around all three of my children and be with my husband. I know that the stem cell harvesting is coming up and next Friday will be admission for another 5 day stay. I'm starting to wonder just how much more of this hospital I can take - and yet I know just how much of this hospital is yet to come.

Edited to add: Doctors were just in and it sounds like we won't be released until Monday. I want to either scream or cry - ANOTHER Easter in the hospital. That will make 10 days in a row stuck at the hospital. With another 5 day stay coming up a few days after we are released. I'm frustrated right now.

9 comments:

  1. Praying for you and how I wish there was more I could do. I wondered why Ben was still playing on facebook.;)
    God bless

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  2. Praying for you and your family!

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  3. Oh, Beth. Praying so much for you. I wish there was a way to take this burden from you. I pray that God wraps his loving arms around you and comforts you...

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  4. :( So sorry about the news... I do hope Jacob starts eating soon & you find a way to have a blessed Easter.

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  5. I had a thought about the eating. I know many people who have gone through different cancer treatments that their taste completely changed and they would crave strange things to me. One young man would only eat olives and sliced ham for months. Is Jacob craving anything? We prayed for you all in church tonight and we prayer specifically for Jacob to have a craving for some food. May you feel God's presence with you always! God Bless

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  6. I'm so sorry for all your family is going through right now. You might want to split the hospital time with your husband. It might make things better for everyone.

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  7. Jacob does have some cravings. I bought him bags of food, hoping to tempt him with his favorites. He acts like he wants it, then when I set it before him he doesn't eat it. I did get him to eat a whole cheeseburger from Wendy's yesterday though!

    I would love to split the time between my husband and me. And we will have to do something like that during his month long stay. Unfortunately, he does not want daddy to stay here with him. I don't know why, but if me being here makes him more comfortable then I will do that. I know that I would go stark raving mad being here 30 days though...so we will have to work something out then.

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  8. Is there anything anyone can do to help? What about a place for the family to stay over the Easter weekend in Iowa City? And an Easter dinner? Would Jacob's counts be high enough to "escape" just for a tiny bit with immediate family close to the hospital?

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  9. We are going home today!!!! :)

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