Jacob's pain and breathing got worse over the weekend so I called our Hospice nurse and had her visit this morning. With no air intake in the left lung we went to Iowa City to see what is going on. An x-ray showed the left lung filled with fluid, which we learned often happens as the tumor grows. We chose not to do surgery to insert a chest tube to drain it as it would be a very short term solution (less than a week before the fluid returned) and Jacob hates surgery. So we are home and will enjoy life. When Jacob needs it he can have Morphine and Oxygen. Prayers for his comfort, please.
Prayers for all of you. I really feel like im insulting you to say im so sorry your here in this journey..but I am im so sorry for all of you to learn These lessons of life. God is good when I lost my daughter I couldn't believe it..actually I felt the opposite god took this and turned it good for me I pray the same for u and your family
ReplyDeleteMy heart is breaking for you and your family. 've followed your story since before his very first diagnosis. My prayers are with ya'll for peace and comfort.
ReplyDeleteI am so sorry. I will be thinking and praying for you and your family and that your boy has comfort.
ReplyDeleteI have followed your story for so long and will, as always, have you in my thoughts and prayers!
ReplyDeletePraying. I just can't imagine. :(
ReplyDeletePraying for all of your family as you walk through this deep and dark valley. May God give you strength and comfort.
ReplyDeleteDee
My thoughts and prayers are with you, I hope Jacob is comfortable.
ReplyDeletePrayers for your family and sweet Jacob.
ReplyDeleteI still just look at Jacob and see joy. To me he embodies the spirit of God.
ReplyDeletePraying for comfort for you, Jacob, and your entire family. I am crying out to God today on behalf of your sweet family. I am sure at times like these God feels so far away. I pray that you will feel his comforting arms around you all.
ReplyDeleteOh, Elizabeth... Praying for comfort and peace for Jacob, and all of you.
ReplyDeleteAlthough I do not know your family except through your blog, I feel like you've been able to share so much of Jacob and all the love in your home. Home sounds like such a wonderful place and I'm glad Jacob can be there and be as comfortable as possible. I am praying for Jacob and family.
ReplyDeleteYes I too am praying for Jacob's comfort as well as for strength and joy for you all. Thank you for sharing with us. Much love, hugs and prayers.
ReplyDeleteElizabeth; my mother & I are continuing to see the smiling face of Jacob, and the love he has brought to everyone. Hug and kiss him for us from Ohio. God's Blessings!
ReplyDeleteSo, so sorry :(. I've been following your blog for a while and my heart just sank at the latest news. My heart goes out to you and your little boy who has just been so brave.
ReplyDeleteJust wanted you to know that I'm praying for your family. So sorry that you have to walk this hard road. Praying for His peace that truly does pass understanding (((hugs)))
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