It has been nearly a week since I have posted and my excuse is that I have been exhausted. I would have loved to have just one week of enjoying little Amy before diving back into "life" but it didn't work out that way.
*Hubby had to go back to work the day after I arrived home from the hospital in order to save as many PTO days as possible. Adjusting from 3 to 4 children seems much harder than 2 to 3.
*We met with the Palliative Team at the hospital on Monday. We had our first visit with Hospice yesterday. This all seems surreal, and not in a good way. We want to get to know our team of nurses and social worker before we may really need their help.
*With that said, we are not giving up hope. Jacob feels great (except for a lingering cold that all the children have, even little Amy). Because the doctors say they can't cure him they automatically refer him to Hospice. We are still praying for a miracle for our little guy.
*I joined a Bible study, which is exactly what I need at this time. My days may be chaos, but I hope to hear God's soft whispers leading the way on this path.
*I'm crabby and exhausted. I ask for prayers from all of you for more patience and calmness for myself. I could really use some!